Yellow Stream - A Cancer Diary |
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Chapter 12: Where Do We Go From Here?6/16/97: The Major Factor is MindfulnessThis morning, I went to a Feldenkrais class taught by Joanne at D. B.'s house. I've been there before, and always enjoyed it. Today was special because the lesson involved the knees and hips, which have been a problem for me over the past few years. Gail Teehan treated me to lunch and we walked a little in Belvedere Park. I almost had my strength back. The rest of the day I spent working on some new problems in the Sniffer. When will they ever end? I was beginning to wonder, "Where do we go from here?" The treatments are done, but I am aware that surface tumors can recur under normal circumstances. My job is to continue to keep my circumstances on a higher plane. I have to keep on taking my supplements, continue with support groups, guided imagery, exercise, and body work. I should be back playing tennis by the end of the week! Nonetheless, the major factor is still mindfulness! 6/17/97: The Tail of the KiteToday was one of those days that started out being very stressful, as I was under pressure to solve a bug and chauffeur my kid around, and it also ended with a lot of stress as a result of negative thoughts that entered my mind after attending the Center for Attitudinal Healing. After delivering my daughter to the shopping center with her friend, I went for another healing massage with Gail Teehan. She worked quite diligently on my shoulders and abdomen, and remarked that the effects of the chemo seemed much less. I also felt a strong healing coming into my body as she massaged my abdomen in a tender and loving way. This was the first time I had a massage at her house and we sat down for sushi afterwards. So I was feeling pretty good when I left her. From there, I went to a session with Leslie Davenport. As I brought her up to date with all the wonderful experiences I've been having since our last session, I began to cry again, as the full extent of the emotional impact of the events hit me again. We talked at length about the opening of my heart chakra. During the guided imagery, she was trying to ground the energy so that my heart would stay open. While I was there, it seemed to work, but when I got home, I really experienced the fear of being hurt when I was so vulnerable. I spoke with her later on the phone and expressed my fears. To this, she once again emphasized the importance of grounding the energy rather than closing off. All of these experiences led me to go the Center for Attitudinal Healing, even though my wife was taking the night off. At the Center, I shared the heart-warming events since last Thursday, and felt good about being open again. But then someone shared some experiences that made me start to think again, and I became lost in the fear. I began to doubt my love for myself, as I had most of my life. I felt like I was about to loose it and then the session was over and I could retreat into myself. I tried to explain what was going on to my wife, but wasn't able to compete with the TV. So what started out stressful due to performance and duty wound up stressful due to fear and doubt. All of these characteristics can be explained through knowledge of my point on the enneagram. Point six, as I've mentioned before is the position of the doubter, and fear is the passion. It looks like I've allowed my old personality to rear up again in the face of stress. And then I wonder, how can I alter my path of recovery so I don't wind up in the same place I was when the cancer struck. If I do, there will be no real healing, as I must heal my aching heart. 6/18/97: Eating Soup with a ForkToday was probably the worst day that I've had since I received my diagnosis. I was full of emotion and frequently broke down crying. The morning was especially trying, as I was desperately trying to get in to see Leslie Davenport, having told my boss that I wouldn't make it in today. The best she could offer was 6:00 tomorrow evening, so I jumped on it. The doubt factor was the strongest. I doubted myself. I doubted my recovery. I was consumed by the idea that if things didn't change in my life, I would have more trouble as a person who had had cancer than a person that has cancer and knows it. I was extremely afraid of be hurt and abandoned. Now that I am well, are my friends still going to care about me? Will I be able to continue to create my dream? Will my heart remain open? Or, is it already out to lunch? What about the divine love I was feeling last week? What about the love my daughter expressed for me last Friday? How can all of this be simultaneously true in my experience. Well, here I am, eating soup with a fork! You'll have to read It's Easier Than You Think by Sylvia Boorstein to get the full impact of what I'm doing! The book is about the Buddhist way to happiness, and I spent the afternoon reading the whole thing, in between fits of tears and meditation. One of the main ideas that struck me from the book was that, "Traditional Buddhist texts teach that the ability to sustain attention in the truth of the moment is the antidote for doubt." Many of her stories also moved me to tears. One of the bells of mindfulness that happened during my meditation was as call from a member of Anna Halprin's group who offered to give me a massage tomorrow after talk at Voices of Healing. I guess I'm doing a little better now that I'm eating my soup with a fork and writing in Yellow Stream! 6/19/97: Voices of HealingI woke up this morning feeling a lot better than yesterday. I had spent much of the night doing mind stories and metta meditation. The metta meditation is a loving kindness meditation from the Buddhist tradition. I've adopted mine from several sources and it goes like this: First you shower yourself with loving kindness by saying to yourself with feeling:
May my heart remain open. May I know the beauty and the radiance of my own Buddha-nature. May I be healed. May I be happy, truly happy! May I not cause anyone to suffer. In the afternoon, I went to a meeting of Voices of Healing in Mill Valley. It turned out to be a support group much like the life threatened group at the Center for Attitudinal Healing. I was touched by people's healing stories. After the meeting, I received a massage from Pauline from Anna Halprin's group, and I've added her name to the resources list. Pauline is also living with cancer and continues to study with Gabrielle Roth. She was gentle and prayerful as she gave me an Eselan massage. The massage was excellent, and the mood was enhanced by the Tibetan music in the background. From there I went to a session with Leslie Davenport. I needed to see her again this week because I felt in crisis with the thought of resuming my life as it was prior to the cancer. I felt and still feel that if I allow those conditions to be re-established, I'd be really susceptible to a recurrence of my disease, and this made me panic. There were other issues that came up, especially how much love if flowing into my life from many sources, but I was in the middle of a severe doubt attack. 6/20/97: A Scare in the NightIn the middle of the night last night I woke up from a dream and I was lying on my left side. I noticed a somewhat painful feeling in my left thigh half way between my hip and my knee. When I felt around, I noticed a lump, and was panicked immediately. I felt for sure I had a metastasis in my leg. After feeling sorry for myself for a few minutes, I collected myself, returned to mindfulness and thought rationally about it. I hadn't read that bladder cancer metastasizes to the soft tissue, but I was still worried. I called the hospital to leave a message for Dr. Halberg. I hardly slept the rest of the night. In the morning, Dr. Halberg's office called to say that she was off for the day, but they moved my follow-up appointment from July 2 up to June 24, so I'll see her on Tuesday. In the meantime, my friend, Dr. Marty Rossman called about another matter and offered to look at the lump. I went to his office and he confirmed what I now suspected with a lipoma - a fatty tissue that is no threat to anything. I've had a rather large lipoma on my back for as long as I can remember, and I don't have a clue where it came from. I was a basket case for the rest of the day! I couldn't work, and I could barely function. I had to take care of one of my daughters, and we met a few friends for lunch at Kitty's Place. This was the nicest part of my day. 06/21/97: Separate Cars, Separate RowsThis was one of the first days that I didn't think much about the cancer. I worked in the morning and early afternoon to catch up on some coding that I haven't been able to do because of feeling so bad. I also had lunch with the girls and made two copies of the graduation tape. Then I did a mind story and took a long bath. By the time I was done with these activities, I was ready for a night out on the town. We took our kids to the R. and J.'s house where we met M. and M. R. and their kids. All the kids stayed together and we went out for pizza and a movie. The men drove in one car and the ladies in another. We even sat in separate rows in the movie. We saw, "Ulee's Gold." 6/22/97: Another No-Cancer Day!Today was another day that you wouldn't think I had cancer unless you asked! I spent the morning scanning images from the graduation and Father's day last week. In the afternoon, we went to visit friends in San Mateo, and we took a walk that was the longest walk I've been able to manage since completing the chemotherapy. I didn't think too much about my disease until I arrived home exhausted. Then I felt it in spades and choose to listen to Thich Nhat Hanh. 6/23/97: No Pot stickers for my Chop SticksToday I'm back to healing. I went to see Gail Teehan this morning and spent about an hour teaching her how to do a mind story. Then I thought I was scheduled in for a Feldenkrais Functional Integration lesson, but it turned out to be an hour and a half massage, and was it wonderful. It took me a little by surprise to have the massage, but she did such a good job, I didn't mind! I remember crying several times, as she was working on my shoulders, and she said that she felt that all of the poisons are out of my system at last. We then had lunch together in the shopping center at a Chinese restaurant. Next, I went to see Leslie Davenport. While I was waiting to see her, I managed to get a little work done. The session with her was so fine! I seem to come out of there with profound insights and a lot of wisdom. She really validated my use of mindfulness in my healing process. I am really fortunate to have three such remarkable healers in my life who I love very much. Of course I'm referring to Gail, Leslie, and Anna Halprin, who is getting a life-time achievement award for choreography at Duke University as I write. I'm grateful for my physicians, Drs. Neuwirth, Gullion, and Halberg, and I feel that they were wonderful technicians who implemented a protocol that I found in my own research. But I really feel that a lot of my physical healing and all of my mental and emotional healing has come through the hands of Gail, Leslie, and Anna. 6/24/97: MoxibustionToday was another day of healing. I spent the morning working, but then went to see Marty Rossman at 1:15 for acupuncture and Dr. Halberg at 3:00 for a follow-up visit. The emotional impact of the acupuncture treatment was unsuspected. I have had acupuncture before, but today I really felt the presence of someone who I know loves me as well. He worked on the kidney meridian with needles for just a short time and then he applied moxibustion to the same meridians. Moxibustion is "the burning on the skin of the herb moxa." In these days, they have sticky ends that you place on the meridians. Marty gave me a week's supply so that I could apply the moxibustion to myself in between visits. We had to wait an hour to see Dr. Halberg, but it was not so bad except for the fact that I had to reschedule my eye exam. She was her kind, caring self, in spite of being an hour behind schedule. I felt that she really paid attention to my physical and emotional needs, as I try to understand the effect healing on my life. She didn't think anything of the lump I discovered last Friday, and said that it should be watched. She outlined my program for continued treatment, which consists of a chest X-Ray, complete blood count and blood chemistry, and cystoscopy every three months for the first year, every four months for the second year and every six months for the third through sixth year. I feel comfortable with this schedule, and the first thing I have to do is get the X-Ray, probably Thursday. In the evening, my wife and I attended our respective groups at the Center for Attitudinal Healing. I was very touched by the stories people told, and I guess that's why I keep coming back. I spoke mostly about how much love was coming into my life and how much difficulty my wife is having with being my primary care taker. The latter idea was picked up by some of the other members of the group. I really felt a lot of compassion for care givers. Remember, I was in that role when my son was sick 21 years ago! 6/25/97: Hi Ho, Hi Ho...Today I went to work in Menlo Park. Many people expressed how glad they were to see me, and I felt very supported. Now I am going to start work on the next generation project and try to contribute as much as I can. When I got home, I tried out the moxibustion on myself. It seemed to have some effect, but I was too exhausted from setting up the environment and the long time in the car to go to and from work. 6/26/97: What's All This Chemotion About?This morning I went for a chest X-Ray, but I won't know the results until tomorrow. I'm a little concerned, but not nearly as much as I am about my emotional state. It keeps rising and falling, just like my breath in the belly! Cancerport was a bit disappointing this morning. I thought I would be able to share more of the emotional content of my life, but there were so many people there that I didn't feel comfortable letting it all hang out. Many people complained of care that was not so good and one person said that she had to take charge herself. I realized that she was right and that this was what I had been doing and need to keep doing. Chemotion is a term I just created. It refers to the emotional ups and downs that have been occurring in me over the past three weeks, since the completion of my chemotherapy. I like the word, and I'm going to continue to use it. I went to speak with D. S. about chemotion. She has been living with ovarian cancer since 1991, and has been sending my get-well cards almost weekly. She is a person with a high level of self-esteem and a strong will to live. She shared with me her similar experiences with swinging emotions, and I felt quite comforted. 6/27/97: Master MaThis morning, I had my eyes examined because I broke my frames. I found out that the insurance plan only pays for frames every other year, so I would only be covered for the exam and lenses. I opted to take the frames to the place I bought them, since my prescription hardly changed. They sold me a new frame at a replacement price (basically half of retail) and put the lenses in right on the spot! After the exam, I went to Marin General Hospital for a Qi Gong lesson with Master Ma. He is Chinese and has been in this country only seven years. Even though his english was broken, I was able to understand what he said. He taught us the basic posture and the basic energy movement exercise. These were fairly simple and somewhat close to what my friend had taught me. Then he had us sit down and do an energy channeling exercise through our lung tips visualizing white light coming through our thumb and small finger joined together and placed over the opposite lung tip. Thus our arms were crossed, our backs straight and knees shoulder distance apart. One of my neighbors died yesterday of metastatic prostate cancer. Although I didn't know the man at all, his wife was always kind. I really felt sad about his death and for the children he left behind. 6/28/97: Spectacular Fireworks!I played one set of doubles the morning, and it felt like I had played for three hours after the first time I served. I'm definitely not back to normal, but can you imagine the joy I felt, just hitting the ball after such a long time? Someone gave Marty Rossman tickets to the A's game, so we took the girls to the Oakland Coliseum to see the A's loose 2-0 on two homers by the same guy. The game was followed by the best fireworks display I'd ever seen! It was so much fun! I felt fine, even though I did play tennis in the morning. 6/29/97: Naughty MariettaMy son had a leading role in Victor Herbert's Naughty Marietta in the San Jose Lyric Theater production today at the Montgomery Theatre in downtown San Jose. He played the part of the villain, Etienne Grandet. His performance was marvelous. His voice was the clearest and most understandable of any of the leading singers. Especially because he is a very nice person, he was a convincing villain. 6/30/97: Anna's Back!I phoned the radiation oncology department to find out the results of my X-Ray from last Thursday. The person who answered the phone said that the results were wonderful! I had her repeat the statement three times just to be sure I got it! I went to Gail Teehan's Feldenkrais class in Tiburon this morning and then followed her to her office for a Functional Integration lesson. The class consisted of standing and kneeling lessons that served to loosen up my neck and shoulders. It was more strenuous than any of the previous lessons because we were standing most of the time. The FI session was wonderful! Her healing hands and gentle manipulations of my body made me fully relaxed. In the evening, I went to Anna's class. She shared her experience at the American Dance Festival, and I was exceedingly happy for her triumph! She sparkled with light as she talked about the performances that she led, and she said that the response was phenomenal!
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